Ali in the ocean. Ali is a 6 yr old little girl who lives in the United States, suffers from Stone Man Syndrome, or FOP. FOP is one of the rarest and most disabling conditions know to man. Unfortunately it is terminal and there is no cure or treatment available at this time. 'The water may wash away her footprints, but nothing will take away the memory of her walking in the ocean for the first time' Ali - USA - Fibrodysplasia ossificans progressiva