Name of our daughter is Lena, she is 3 years and 6 months old. Lena was the fourth child in Russia, who was diagnose tyrosinemia type 1. Now there are 12 with such diagnose in Russia. There were a lot of barriers to get appropriate treatment. Thanks God, we were lucky and Lena was the first child who got life necessary treatment via government supplying. Nowadays she is in excellent physical and intellectual shape, enjoying socialization with other children, fan of poetry and she often recite poetry learning by heart. When she was diagnosed tyrosinemia type 1, the future didn’t seem so bright. We don’t cultivate in our family disable child way of life. Our child is especial child, who is equal for chasing happiness and dreams in her life. The most important things: she is happy, she is with us, she is alive.